Latest News
SAVE THE DATE!!!
September 25 and 26, 2015
 
The Canadian Marfan Association Conference is happening in OTTAWA this Fall...We look forward to providing an interesting and informative program for professionals and families at our bi-annual conference.
Check back soon for more details and registration information...
 
See you in September!!!

 
Marfan Changes

1st Change…On December 12, 2014, after 4+ years of dedicated leadership, SHARMIN GANDHI resigned as Executive Director of the Canadian Marfan Association. Sharmin led the CMA through some exciting times with skill, tact and energy. Her commitment to the clients, community and the professional team was always strong and forthright. Her talents will be missed.
We wish Sharmin well as she takes on new challenges at the Oakville-Trafalgar Hospital.
 
2nd Change… On December 12, 2014, BARRY EDINGTON was offered the position of Executive Director with the Canadian Marfan Association. From his previous experience at a variety of community based agencies (Children’s Aid, Canadian Cancer Society, Centre for Education and Training, Rotary International), he has the knowledge and ability to connect with people, to learn, and to create opportunity.
Each of these attributes will be put to good use at the CMA.
 
3rd Change…On December 19, 2014, CHRISANNE CAMPOS changed her CMA status from ‘volunteer’ to ‘Research/Administrative Assistant’.  Chrisanne is a resourceful and thorough team player, showing interest in aortic disorders from a research perspective, and with agency operational support. Chrisanne’s PhD in molecular biology will assure the CMA of carefully assessed research updates in addition to her hands-on office assistance.
 
4th Change...a very kind donation of office space from one of our long-time supporters has resulted in a CMA office move effective February 16, 2015. For the past 20+ years we have operated from a small room in an industrial mall in Mississauga. We are now resourced in a medical building close to the Trillium Health Centre, Mississauga-campus. Our phone numbers (905 826 3223 and Toll-free 1 866 722 1722) remain the same, as does our mailing address (Centre Point Plaza, 128 Queen St. S., P.O. Box 42257, Mississauga ON L5M 4Z0). Our new location will give us better access to the medical community throughout the GTA, as well as being more ‘client-friendly’ to the public. If you would like to visit us at this new location, please give us a call and we’ll arrange a convenient time.
 
New Office 1.jpg  New office 2.jpg 
 
2014 Holiday Story & Campaign
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Meet our friend Noelle from the Beer Family. This year's holiday campaign shares a story written by Noelle's parents, Tanya and Kevin Beer about her challenges and triumphs over the last year. Noelle's courage and strength is truly inspirational! 

This holiday season, please donate generously to the Canadian Marfan Association so we can continue to support families in our communities across Canada. Your donation will help us educate families and healthcare professionals about the latest in the diagnosis, treatment, and management of genetic aortic disorders. Join us as the CMA becomes a global leader in aortic health. 

The Canadian Marfan Association wishes you and your family a happy and safe holiday season filled with love and laughter. We thank you for your continued support!   

CLICK HERE to view the 2014 Holiday Story from the Beer Family

CLICK HERE to DONATE 

 

 
Losartan vs Atenolol Study Results: Equal Therapies

2014 November 19

The long awaited results of the NIH, Pediatric Heart Network (PHN) and Marfan Foundation funded clinical trial of Losartan vs. Atenolol in Children and Young Adults with Marfan syndrome were presented at the American Heart Association Scientific Sessions yesterday, and simultaneously published in the New England Journal of Medicine. Click here for the CMA's Statement and links to additional resources.  

 
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