National Marfan Awareness Week, November 13 - 19, 2011

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Dear Members and Friends,

National Marfan Awareness Week is fast approaching and takes place from November 13 -19, 2011. We’re very excited about our theme for this year, “Share Your Story”. We’d love to know about you, your family and friends and your experience with Marfan Syndrome or any of the Related Connective Tissue or Cardiovascular Disorders. How has having Marfan Syndrome or a related disorder impacted your life? Is there a special event that you’d like to share with others on our website. You can send us your stories (pictures are always appreciated) by email at This e-mail address is being protected from spam bots, you need JavaScript enabled to view it If you would like to send us a short video please contact the CMA office. We’d especially love to hear from our younger members.  So have fun, be creative and tell us about you!

As always please also consider holding an awareness event or fundraiser. There are many great ways you can spread awareness and educate those around you. Here are just a few ideas. http://www.marfan.ca/content/view/77/46/  The Canadian Marfan Association can provide you with posters, brochures and balloons for your event.  And please don’t forget to send us photos of your event so we can include them in our newsletter and website.

If you plan to organize an event for National Marfan Awareness Week or would like more information about sharing your story please contact us toll free at 1-866-722-1722, 905-826-3223 locally or email us at This e-mail address is being protected from spam bots, you need JavaScript enabled to view it  

Thanks and have fun spreading awareness!

 


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