TOGETHER WE STAND TALL! At 25 years, this is your Association!

The Canadian Marfan Association, supporting Marfan Syndrome, Loeys-Dietz Syndrome, ACTA2, Familial Aortic Aneurysm, Familial Ectopia Lentis disorders and other related disorders.

Advancements in medical science have brought about the emergence of several related disorders to Marfan syndrome. In our 25 years as an Association, the CMA has been committed to providing all related disorder patient groups with education, support, and resources. We are proud to inform you that the CMA continues to provide ongoing support to all patient groups, as these related disorders share a high degree of similarities, stemming from a variety of mutations on the same chromosome. Proper treatment and management from experienced specialists is unequivocally of utmost importance and similar, yet individualized across disorders. This Association belongs to its members, those with Marfan, those who have been re-diagnosed to a related disorder, and those who are un-diagnosed or suspected of having a mutation, this is your Association and TOGETHER WE STAND TALL!

The Canadian Marfan Association is proud to announce ACTA2 representation on our Board of Directors. We would like to provide a warm welcome to our newest Director Lisa Iliadis, who will represent and focus on ACTA2 and Familial Aortic Aneurysm and Dissection patient groups.

 


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