Monday, Feb. 28, 2011 marks World Rare Disease Day. As a patient, family member or caregiver affected by a rare disease, show your support by helping to increase awareness of rare diseases. Make a donation in honour of World Rare Disease Day, share your story about living with a rare disease at www.rarediseaseday.org, download the official poster and logo, or check for events near you!

Please also send us your submission at This e-mail address is being protected from spam bots, you need JavaScript enabled to view it to share your stories and pictures with the Marfan and connective tissue disorder community!