Marfan - The Marfan House Raises $20,000!

The Marfan House Raises $20,000!


Julianne MacDonald and Dr. Gabrielle Horne accepting the donation on behalf of the CMA	The RoofTight Team

See presentation ceremony/press conference video above.

The Canadian Marfan Association is honoured to announce the sale of the first Marfan House.

After months of anticipation, the Marfan House closed on April 28th, 2010 and a donation was presented on April 26th at a press conference in Sackville, Nova Scotia. Dr. Gabrielle Horne, who sits on the Medical Advisory Board to the Canadian Marfan Association, generously accepted a cheque on behalf of the CMA in the amount of $20,000!

As highlighted in the last issue of Newslinks, The Marfan House project was spearheaded by Scott Smith, President of RoofTight Construction (www.rooftight.ca). RoofTight’s in house designer, Michelle Reid has a daughter with Marfan Syndrome. “Maybe we can help educate others about this little known disease and ultimately save a life,” said Smith. As, Mr. Smith intends on continuing this project on an annual basis, RoofTight Construction’s contributions play an influential role in assisting the Canadian Marfan Association to achieve it’s mission, to save lives and enable promising futures for those living with Marfan Syndrome by educating patients, families, and the health care community, creating a network of support, and supporting research. "What Scott did was wonderful and incredibly generous," said Julianne, Reid’s daughter; "It is very important to raise awareness for this disorder because, if not monitored by doctors it can be a silent killer."

The Canadian Marfan Association would like to greatly thank all the contributors from RoofTight Construction for their hard work, continued support, and believing in the Canadian Marfan Association!

Click below to view an article about the Marfan House highlighted in the Halifax News Net:
http://www.halifaxnewsnet.ca/index.cfm?sid=339008&sc=608

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