Hi Eva,

My son's doctor allow him to swim as much as he wants, all the others activities suppose to be with limitation (like running and soccer). Totally prohibited karate, boxing and any other contact sport.
My son loves to swim, he is very good runner, but I'm not so happy about his good running skills, because some times he's complaining about heart ache afterwards. Also he's a good Wii player and he does all the sport stuff from there. It's not all day activities though.
Actually he does whatever he wants in casual level, except contact sports.

Best regards,
Vira.

PS. sorry for mistakes, English isn't my 1-st language...

Hi, I myself have Marfans and im not able to do much.
Walking is hard, running is just not possible.
The doctors told me lots of swimming helps. and i love to swim.
no contact sports, no dancing.
It's really hard because im a really energenic person, but i stick to art mostly and music