Latest News
Marfan Community News & Events
- In Loving Memory of our Founder Elizabeth McHenry
- Naturopathic Medicine for Aortic Dissection, Marfan Syndrome and Heart Disease
- In Loving Memory of Kathryn Elizabeth Genereaux-Charron
- Rowing in the 2012 Canadian Sculling Half Marathon in Honour of the CMA
- Presenting the Lifestyle Home by Rooftight: 2012 Marfan House
- February 29th, 2012: World Rare Disease Day
- 27th Annual NMF Conference, Portland, OR - July 15-17, 2011
- 8th Annual Jason Keith Memorial Fundraiser
- Garage Sale Supporting the CMA - Sat., June 25 & 26, 2011
- Loeys-Dietz Syndrome Awareness in Orono, Ontario
- In My Hands: A Story of Marfan Syndrome at CommFFest Film Festival
- Damien's Day BBQ and Bake Sale!
- 7th Annual Fundraiser in Memory of Jason Keith, April 10, 2010
- The Marfan House
- National Marfan Awareness Week
- Sept. 22-24, 2009 Aortic Disease Summit & NMF Therapeutic Strategy Meeting
- Recognition & Treatment of Marfan Syndrome & Related Disorders
- Annual Fundraiser in Memory of Jason Keith
- 02/09-Teenager Sells Calendars for CMA
- 11/08-CMA Member Raises Awareness During Marfan Awareness Week











